Our campaigns connect patient concerns with specific requests to universities, health ministries, government and pharmaceutical companies. See how each campaign supports our three goals: research and effective treatments, accessible care, and recognition and support. Each summary explains why it matters, where it stands and what comes next.
Current campaigns
Disability support and paperwork
Collecting private barriers and checking existing help. Preparing initiative; no request sent.
Protect participants and strengthen Long COVID research.
About this campaign
LCAC is asking McMaster to pause recruitment for an independent review and publish the full protocol and statistical analysis plan.
Where it stands
Follow-ups sent 11 Oct to McMaster’s research office, HiREB, HAHSO, the President and the Dean. Independent review and full trial documents remain outstanding.
Next step
Track replies to the 11 October follow-ups. HAHSO, the President and the Dean were asked to reply or give a response timeline by 22 October.
Know where to get assessed, how to be referred and what ongoing support is available.
About this campaign
We’re asking provincial and territorial health ministries for a Long COVID care plan with clear referral pathways, services people can reach, and named responsibility for improvements with public timelines. The goal is better access to care, not simply a document.
Where it stands
Collecting care gaps and feedback. LCAC’s own request has not been sent; individuals can use the draft letter now.
Next step
Use patient feedback to refine LCAC’s request before sending it to health ministries.
Turn a federal response into concrete commitments.
About this campaign
The government answered House of Commons petition e-7076 on 19 August. This campaign examines what that response addresses and what still needs a clear commitment on research, care and support.
Where it stands
Government response tabled 19 Aug. LCAC’s draft follow-up is open for feedback. Not sent.
Next step
Improve LCAC’s draft follow-up with patient feedback before it is sent.
Seek a Canadian access pathway and support for research.
About this campaign
LCAC is collecting questions for Shionogi about Canadian access and Long COVID research. The campaign keeps access questions separate from evidence of benefit for Long COVID.
Where it stands
Collecting questions. No contact made yet.
Next step
Use the questions gathered to shape an initial request. No contact has been made yet.
