Research
Champion ambitious, biomedical Long COVID research and treatment trials that match the scale and urgency of the crisis.
A patient-led national initiative
It's time for Canada to act on Long COVID.
We're building a national network to advance research, improve care, shape policy, and make sure patient voices are impossible to ignore.
Our mission
Turning lived experience into lasting change.
The Canadian Long COVID Action Network is a patient-led initiative working for a future where no one with Long COVID is left without answers, care, or hope.
We connect patients, caregivers, researchers, clinicians, and allies around a shared goal: urgent, evidence-informed action across Canada. We advocate for research investment, treatment access, transparent decision-making, and policies grounded in the realities of people living with this illness.
Work with usWhere we focus
Five priorities. One goal.
Better lives for people affected by Long COVID across Canada.
Policy
Turn lived experience and evidence into practical recommendations for governments, health systems, and funders.
Advocacy
Mobilize Canadians to call for better care, sustained investment, disability support, and meaningful action.
Transparency
Ask where resources go, how priorities are chosen, and whether research meets the standards patients deserve.
Patient Voice
Ensure people living with Long COVID help shape the decisions, studies, services, and policies that affect them.
Current campaign
Long COVID patients deserve better.
Pause McMaster's Lightning Process trial pending an independent scientific, ethical, and patient-led review.
McMaster University's FALCON trial compares the commercially branded Lightning Process with activity pacing. We are calling for recruitment to pause until serious questions about the study's design, transparency, participant protections, commercial relationships, and objective outcome measures have been independently addressed.
Take action
Change starts when we act together.
Join a growing network of patients, caregivers, clinicians, researchers, and allies pushing Canada toward better Long COVID research, care, and policy.